Juvenille granulosa cell tumour

Posted by rhian44

28 Jan 2012

10 comments

Hi there.

I'm new to this site, I had a granulosa cell tumour when I was 22 years of age.
I'm 44 now.

My periods had stopped but the doctors said not to worry sometimes this happens. After a few more months I went back as we wanted to try for another baby and couldn't without periods so my doctor referred me to the hospital. I had internals and blood tests and was under the hospital for a while they said that they couldn't find anything wrong and eventually my periods would start back.

I had another appointment a while later and was told that they could find nothing wrong and to give it a few months maybe stress was causing my periods to stop, but I had already found a huge lump in my stomach that I could move around. Also I had started growing fine hair on my chin and my voice was deepening which was really strange. (this was caused by testosterone that the tumour was giving off). My husband told the doctor about this lump and he sighed and said jump onto the bed and he would check again but as they'd already checked so many times he was sure he wouldn't find anything. He felt the lump straight away and thought that I was about twelve weeks pregnant and told me to come back for a scan in the afternoon. Thats when they found a mass. I was sent home and told to come back on the monday. I was then seen by a consultant who couldn't understand what all the fuss was about as it was a very large fibroid and said they would send for me to have it taken out. I was booked in about six weeks later but then sent home at the last minute as an emergency had come in.
I eventually had the operation a few weeks later after having quite a bit of blood loss which when I rang the ward was told great thats probably your periods starting backe again.
After the operation the consultant and doctors gathered around my bed and said that it wasn't a fibroid after all it was a tumour in my right ovary which they removed as well as the ovary. I was really scared and asked if it was cancer and they said they didn't think so but they would have to wait for the test results.

Eventually when I went back to the hospital for my check up they said that they were trying to be economical with the truth and that the type of tumour I had was rare and they didn't really know what the outcome or treatment would be. Luckily I didn't have to have chemotherapy thank god and was kept an eye on for five years.

I was just wondering if anyone has had the same thing and maybe had an early menopause as I've started to have really bad night sweats.


Sorry to go on for so long. I never know how to keep things short.