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Thoughts and personal experiences

soapsuds

Debulk or not?

Posted by soapsuds
7 hours ago

Complete hysterectomy and removal ovaries and tubes following a decision for a look see about a waterfilled cyst in the womb near to the fallopian tube that kept changing shape in 2007. Difficult op due to adhesions, but surgeon was happy to say no cancer.
2 weeks later hystology proved ...

Cara

An inspirational talk

Posted by Cara
yesterday

I'm an OC patient 2 years along the road, after surgery, chemo, surgery 6month break and a second dose of chemo. It has works to a degree for me. So at the moment I'm "ok".....
My OC burden is like a shaddow to me, I may occasionally forget it's there - because it ...

sunny1

Scared after surgeon appt

Posted by sunny1
4 days ago

I had my consultation with the surgeon thats going to be doing my operation on 12th March. I had 3 cycles of taxol carbo that didnt shrink anything but he is happy to do the op now and then Im being referred to the Marsden after for different chemo (after they have looked at a bigger chunk ...

jeanv

A Good Day

Posted by jeanv
6 days ago

Thought I would write an update on where I am with any treatment. My oncologist referred me to another hospital cancer unit where they run trials to see if there was anything suitable for me. I had appointment today and it has been suggested that I may be suitable for txhe trial PF-1367338 and ...

Didy

Good News!

Posted by Didy
6 days ago

Hi I'm a relatively new member to the website, having been diagnosed with OC 1C having surgery and 6 taxol/carboplatin treatments. Just had my first scan and they are all clear. The nurse gave me the results over the phone as I can't get to see my oncologist until 16 March. I ...

AnnieMulholland

VOICES

Posted by AnnieMulholland
6 days ago

I hope everyone is joining up to Voices to lobby for more action to conquer Ovarian Cancer. The newsletter this month includes an article on Professor Hani Gabra’s latest research publication on OPCML, a tumour suppressor, which may lead to a new therapy using natural proteins instead of ...

homphomp

Needing to vent...

Posted by homphomp
13 Feb 2012

...why do the NHS make life so much more difficult?

I went for my first 6 moth blood screening test way back in mid-December. I'd been told that the Specialist Nurse would ring to let me know the results so I wait, and wait, and wait....nothing. OK the test takes a while ...

suzannehadenough

scan date

Posted by suzannehadenough
11 Feb 2012

my scan date has been set for 19th march so now my review date isnt till the 27th of march.... this seems so far away as i just want to know the outcome..
its so hard just waiting around and its driving me insane.

Sarah23

birth control pill

Posted by Sarah23
8 Feb 2012

Hi Everyone,
Have any of you ladies ever got Ovarian Cancer on the birth control pill? they say it is very good method to stop Ovarian Cancer? but I am being told that everything is a risk factor if you took the pill you wont get Ovarian others say its NOT a 100% and that you could ...

Asiya

Feeling low and everything seems to be going wrong

Posted by Asiya
7 Feb 2012

Hi everyone

My story starts about 5 years ago and to cut a long story short I have had a boarderline ovarian tumour removed last October. I have had a follow up appointment in Jan and they think the tumour cells have got into a fluid. I am therefore having blood tests and ...

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